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Privacy, ownership & hand-off FAQ
Plain-English answers to the questions survivors, caregivers, and treating clinicians ask us most. For the full compliance posture, see the HIPAA-readiness page.
The individual using the tool holds it in their own account. Your clinic never implicitly inherits their record — every clinician view or export happens through an explicit, time-limited, revocable snapshot the patient generates and hands over. Nothing is auto-pushed into your EHR, and nothing about your patients is stored under your clinic without a Business Associate Agreement in place.
Life Spark is a survivorship toolkit, not a treating entity. Content, cascades, and worksheets are aligned to NCCN, ASCO, and COG-LTFU primary guidance and reviewed by our clinical advisory board. Any clinical decision, prescription, or dose change stays with the treating physician — Life Spark surfaces the signal, the clinician makes the call.
The patient generates a snapshot (or a printable transition-of-care PDF) from their own chart, chooses which categories to include (consent-scoped FHIR R4), and shares a one-time link or the PDF with the clinic's intake workflow. The clinical team reviews it inside its existing EHR — Life Spark is not a parallel record. Every snapshot has an expiry and a revoke button.
No. Until a BAA is executed and administrative safeguards are complete, any feature that would put one user's PHI in front of another user (including a clinician) is locked at the code level. Cohort views for licensed clinicians are k-anonymized with a minimum cell size of 20.
Per-seat, per-clinic, or health-system licenses to the clinician workspace: cascade builder, deprescribing worksheet, cardio-onc surveillance library, cohort dashboards, and FHIR R4 export shapes. Life Spark scopes on a 20-minute call, then sends terms and a BAA path. No patient-side workflow changes are required to start.
A strategic, arms-length partnership — a win-win for both organizations. Life Spark is not co-building product with CSPN, and CSPN clinicians are not co-authors of any patient's record. Interaction between patients and outside care teams does not happen inside this web app.
Still have a question?
The intake form on the home page routes survivors, caregivers, and clinicians to the right team. It includes the same consent boxes referenced above.
