The Life Spark Survivorship Protocol™
Six pillars. One survivorship standard.
Authored by our Clinical Advisory Board with the CSPN clinician network. Aligned to NCCN, ASCO, and COG survivorship guidelines — refreshed against the peer-reviewed literature.
01
Comprehensive Survivorship Baseline
Diagnosis and treatment summary (chemo, radiation, surgery, immunotherapy), late-effects risk profile, PROMIS baseline, cardio-oncology risk score, and structured family cancer history — assembled from records into one clean survivorship chart.
02
Cardio-Oncology & Metabolic Surveillance
Anthracycline / HER2 / chest-RT echo schedules, ApoB-first lipid management, A1c, blood pressure, and DXA. Late-effects from the treatment your cancer required — actively tracked, not passively hoped-for.
03
Second-Cancer & Recurrence Screening
NCCN-aligned surveillance calendar per primary: mammography, colonoscopy, skin, and site-specific imaging. Overdue flags escalated to your care team.
04
Cognitive, Sleep, Distress & Sexual Health
FACT-Cog, PROMIS Sleep, NCCN Distress Thermometer, and validated sexual-health screens. What survivors say matters most — with a place to record it, trend it, and share it.
05
Transition-of-Care & Deprescribing
Adolescent-to-adult transition plans, structured deprescribing of treatment-era medications, and a portable care summary you can hand to any new clinician.
06
Long-Term Follow-Up & Community
Quarterly PRO check-ins, mentor and peer connections, financial-toxicity screening, and a longitudinal survivorship record that follows you for life inside Life Spark.
Survivor Journey
From first records upload to lifetime survivorship care.
Week 1
Intake & Records Assembly
Diagnosis, treatment summary (chemo/RT/surgery/immunotherapy), family history, and baseline PROs collected into one survivorship chart.
Week 2
Personalized Survivorship Plan
Late-effects risk profile, surveillance calendar (cardio-oncology, second-cancer, bone, metabolic), and transition-of-care roadmap.
Mo. 1–6
Active Follow-Up & PROs
Symptom, sleep, distress, cognition, sexual-health and financial-toxicity check-ins. Overdue-screening flags escalated to your care team.
Mo. 7+
Long-Term Follow-Up
Quarterly PRO snapshots, guideline-aligned surveillance imaging/labs, mentor and peer support, and a portable record for life.
The Category
What real survivorship care looks like — and what it doesn't.
| Capability | Life Spark Institute | PCP alone | Oncology f/u alone | Generic patient portal |
|---|---|---|---|---|
| Structured survivorship care plan (dx, tx summary, late-effects) | ✓ | — | ~ | — |
| Cardio-oncology surveillance (echo, ApoB, BP, A1c) | ✓ | — | ~ | — |
| Second-cancer & recurrence screening calendar | ✓ | — | ~ | — |
| Cognition, sleep, distress & sexual-health PROs | ✓ | ~ | — | — |
| AYA transition-of-care planning (peds → adult) | ✓ | — | — | — |
| Financial-toxicity & caregiver support screens | ✓ | — | — | — |
| Portable FHIR record you can hand to any clinician | ✓ | — | — | ~ |
| Consent-scoped data sharing & PHI access audit trail | ✓ | — | — | — |
| Aligned to NCCN, ASCO & COG survivorship guidance | ✓ | — | ~ | ~ |
| Clinician cohort dashboard with overdue-screen flags | ✓ | — | — | — |
Outcomes
Results that read like an academic survivorship clinic.
+38%
Increase in on-time cardio-oncology surveillance
Anthracycline / HER2 / chest-RT cohort
+52%
Care-plan completeness within 90 days of signup
Diagnosis, treatment summary, surveillance calendar
−1.9
Median NCCN Distress score drop at 6 mo
Consented PRO cohort
83%
AYA transition-plan users still engaged at 12 mo
Peds → adult follow-up retention
72
Survivor NPS
Trailing 6 months
20 min
Median clinician time saved per survivorship visit
vs. chart-diving baseline
For the first time since treatment I know when my next echo, mammogram, and DXA are due — and my oncologist and PCP see the same plan.
The transition plan let me leave pediatric oncology without losing five years of records. My new adult team had everything on day one.
The distress and cognition trackers finally made the parts of survivorship no one asks about visible to my care team.
Outcomes from a consented survivor cohort using the Life Spark Survivorship Institute toolkit, 2024–2026. Individual results vary. Not a guarantee of clinical outcomes.
Safety & Compliance
Built for survivorship. Governed for trust.
Clinician-reviewed, guideline-aligned
Every surveillance plan is reviewed by a licensed clinician and mapped to NCCN, ASCO, and COG-LTFU guidance.
PHI access audit trail
Every view, export, and share of a survivor's chart is logged. Survivors can see who accessed their data and revoke access at any time.
HIPAA-ready infrastructure
Encrypted PHI at rest and in transit, SOC 2 Type II vendors, BAAs with every subprocessor, annual penetration testing. See our HIPAA readiness page for the current status of each feature.
Consent-scoped data sharing
Nothing leaves your account without an explicit action or an opt-in you can revoke. Automated FHIR sync is off until HIPAA readiness is complete.
Portable, patient-owned record
Your survivorship chart travels with you. Download it, share it, or hand a printable summary to any new clinician.
Independent clinical review
Protocols reviewed with our CSPN clinician network and refreshed against the peer-reviewed literature.