Impact & KPIs

Who this is for, what we'll measure, and when.

We only claim impact we can measure. This page lists the audiences Life Spark Survivorship Institute serves, the annual KPIs we're accountable to, how each metric is gathered (with your permission), and the date we expect to hit it.

Who Life Spark is for

Adult cancer survivors (all primaries, 18+)

Problem

Fragmented follow-up, late-effect surveillance gaps, no portable record.

What success looks like

One survivorship chart, on-time surveillance, less anxiety between visits.

AYA survivors (15–39) transitioning from pediatric to adult care

Problem

Cliff between pediatric oncology and adult medicine — up to 60% lost to follow-up in year one.

What success looks like

Structured transition plan, ≥80% survivors retained in follow-up at 12 months post-transition.

Caregivers & family members

Problem

Invisible workload, no shared plan, no way to see what's due next.

What success looks like

Read-access to the survivor's plan (with consent), reduced caregiver-burden score.

CSPN-verified clinicians & survivorship programs

Problem

No cohort view of overdue echo / lipids / DXA / second-cancer screening.

What success looks like

Cohort dashboards, closed-loop escalations, measurable reduction in overdue surveillance.

Employers & payers sponsoring survivorship benefits

Problem

No line-of-sight into whether survivorship benefits actually change outcomes.

What success looks like

De-identified cohort reporting on engagement, PRO trends, and screening completion.

Annual KPIs

Reviewed each year. Reported publicly in aggregate. Everything below runs on data you've consented to share.

KPI	Target	By when	How we measure	Source
Monthly active survivors (MAS)	≥ 60% of registered survivors log at least one tool entry per month	12 months from launch	Consent-gated `tool_use` events + monthly cohort roll-up.	Consented analytics
Care-plan completion	≥ 70% of survivors have a complete survivorship care plan (diagnosis, treatment summary, surveillance calendar) within 90 days of signup	12 months	Server-side completeness check on care-plan fields — no PHI reported, only completion %.	Clinician dashboard
On-time cardio-oncology surveillance	≥ 85% of anthracycline / HER2 / chest-RT survivors have an echo within guideline window	18 months	Overdue-flag counters from the clinician dashboard, aggregated monthly.	Clinician dashboard
AYA transition retention	≥ 80% of AYA transition-plan users still engaged 12 months after transition	24 months	Consented longitudinal cohort; retention = ≥1 tool entry in the 12th month.	Consented analytics
Distress reduction	Median NCCN Distress score drop of ≥1.5 points over 6 months of active use	18 months	Consented PROMIS + Distress Thermometer trend analysis on aggregate, never individual.	Consented PROs
Clinician time-saved	≥ 20 min saved per survivorship visit using the dashboard vs. chart-diving	12 months	Optional in-app time-saved survey after case reviews; participation is voluntary.	In-app survey
Patient trust	Net Promoter Score ≥ 50 from survivors and ≥ 40 from clinicians	12 months	Quarterly consented NPS prompt inside the app.	In-app survey
Equity of access	No cohort defined by age band, primary cancer, rural/urban, or insurance type has < 70% of overall MAS	24 months	Optional self-reported demographics with clear opt-out; equity report published annually.	Consented analytics

How we gather the data — organically, with permission

Default off. Analytics are disabled until you turn them on. Nothing is inferred, nothing is bought from third parties.
Event-level, not PHI-level. We store event name, path, tool key, role, and optional numeric values. No free-text notes, no symptoms, no medications.
Consented PROs. Aggregated PROMIS / Distress / FACT-Cog trends only if you opted in. Individual scores never leave your account.
Withdrawable anytime. Toggle off and we stop collecting immediately. You can request deletion from the History & Export page.
Equity by opt-in demographics. Voluntary self-report; used only for equity reporting, never for targeting.

Consent terms are surfaced at signup and on the HIPAA readiness page. Pre-HIPAA, no PHI leaves your device without your explicit export action.

Your data, your call

Questions about how a KPI is defined or measured? Contact the team →