Q: Who owns the patient data captured in the Life Spark toolkit?

The individual using the tool holds it in their own account. Your clinic never implicitly inherits their record — every clinician view or export happens through an explicit, time-limited, revocable snapshot the patient generates and hands over. Nothing is auto-pushed into your EHR, and nothing about your patients is stored under your clinic without a Business Associate Agreement in place.

Q: What is the medical-oversight model for the Life Spark Survivorship Institute?

Life Spark is a survivorship toolkit, not a treating entity. Content, cascades, and worksheets are aligned to NCCN, ASCO, and COG-LTFU primary guidance and reviewed by our clinical advisory board. Any clinical decision, prescription, or dose change stays with the treating physician — Life Spark surfaces the signal, the clinician makes the call.

Q: How does the hand-off from a Life Spark patient to a clinic actually work?

The patient generates a snapshot (or a printable transition-of-care PDF) from their own chart, chooses which categories to include (consent-scoped FHIR R4), and shares a one-time link or the PDF with the clinic's intake workflow. The clinical team reviews it inside its existing EHR — Life Spark is not a parallel record. Every snapshot has an expiry and a revoke button.

Q: Does Life Spark touch PHI or transmit anything to a clinician on the patient's behalf?

No. Until a BAA is executed and administrative safeguards are complete, any feature that would put one user's PHI in front of another user (including a clinician) is locked at the code level. Cohort views for licensed clinicians are k-anonymized with a minimum cell size of 20.

Q: How does licensing the clinician workspace work for a clinic or health system?

Per-seat, per-clinic, or health-system licenses to the clinician workspace: cascade builder, deprescribing worksheet, cardio-onc surveillance library, cohort dashboards, and FHIR R4 export shapes. Life Spark scopes on a 20-minute call, then sends terms and a BAA path. No patient-side workflow changes are required to start.

Q: What is the CSPN relationship?

A strategic, arms-length partnership — a win-win for both organizations. Life Spark is not co-building product with CSPN, and CSPN clinicians are not co-authors of any patient's record. Interaction between patients and outside care teams does not happen inside this web app.

Question 1

Who owns the data I enter into Life Spark?

Accepted Answer

You do. The record is yours. You can export it as a portable FHIR R4 bundle or a PDF transition-of-care plan at any time, and you can delete it from your account. Life Spark does not sell your data and does not share it with third parties for advertising.

Question 2

Is Life Spark a HIPAA-covered entity?

Accepted Answer

Not yet. Life Spark is running a HIPAA-readiness program — administrative safeguards, Business Associate Agreements, and audits are in progress. Until that program is complete, use Life Spark with your own information (yours to keep, yours to hand off) rather than as the primary place a clinician stores another patient's PHI. See the HIPAA-readiness page for the current status.

Question 3

Can I hand my transition-of-care plan to my next physician?

Accepted Answer

Yes — that is the point. You can download a one-page transition-of-care plan as a PDF, or an interoperable FHIR R4 bundle for your next clinician's EHR. Nothing is transmitted on your behalf; you decide what to share and when.

Question 4

How much does it cost survivors?

Accepted Answer

The core survivor toolkit — symptom logs, distress and cognition screens, financial-toxicity screening, cardio-oncology surveillance prompts, and the transition-of-care plan — is free. There is no credit card required to start.

Question 5

Who can see my record?

Accepted Answer

By default, only you. If you invite a caregiver or a clinician, you grant scoped access — and every read of your data is written to an access log only you can see. You can revoke access at any time.

Question 6

What are the very first steps after I sign up?

Accepted Answer

Most survivors start with distress or sleep (five minutes, once), then add a symptom they want to trend (fatigue, neuropathy, hot flashes). After a few entries, you can generate a transition-of-care plan and download it as a PDF or FHIR bundle.